Register data
Register data can be accessed in three ways.
Please note: To access register data, specific and mandatory requirements apply regarding the ethics application. Carefully review the specific wordings for ethics applications provided on this website – in the section How to apply - Requirements.
1. Unprocessed register data provided directly by SCAPIS, annual data until 2018
- The Swedish Prescribed Drug Register (Läkemedelsregistret)
- The National Patient Register, Inpatients (Patientregistret slutenvård)
- The National Patient Register, Outpatients (Patientregistret öppenvård)
- The Swedish Medical Birth Register (Medicinska födelseregistret)
2. Tabular register-derived data provided directly by SCAPIS
Data currently open for access can be viewed in the SCAPIS Portal under the categories “Register-derived data…”.
To avoid underpowered studies using register-derived data, it is strongly recommended to consult expertise in statistics before conducting analyses.
Tabular register-derived data based on registers from Socialstyrelsen
Register-derived data for different key diagnoses, based on a combination of the National Patient Register, Cause of Death Register or other registers mentioned below will over time be made available for SCAPIS applications.
Variables open for access:
CHD (Coronary Heart Disease)
- Non-fatal myocardial infarction (I21-I22 “in first position”)
- Fatal coronary heart disease (I20-I25 as “underlying cause of death” (ULORSAK
ASCVD, SCAPIS version of ASCVD (AtheroSclerotic CardioVascular Disease)
- Non-fatal myocardial infarction (I21-I22 in first position)
- Non-fatal ischemic stroke (I63 in first position)
- Fatal coronary heart disease (I20-I25, "underlying cause of death", ULORSAK).
- Fatal ischemic stroke (I63, “underlying cause of death”, ULORSAK)
- CHD-intervention, CHD including coronary procedures
- Non-fatal myocardial infarction (I21-I22 “in first position”)
- Fatal coronary heart disease (I20-I25 as “underlying cause of death” (ULORSAK)
- Revascularization (PCI/CABG, FNA-FNG)
The following diagnoses will also be added:
- Diabetes (NDR)
- Pulmonary cancer
- Pulmonary embolism
- Stroke (in first position)
- Stroke (in any position)
- Ischemic stroke
- Hemorrhagic stroke
- Atrial fibrillation (first position)
- Atrial fibrillation (in any position)
- Statin treatment (2 prescriptions / per 6 months)
Tabular register-derived data based on other registers
Currently not available.
Upcoming releases of register-derived data
Register-derived data will continuously be added to the database (no schedule is currently available)
- Prescribed Drug Register (Socialstyrelsen)
- Medical Birth Register (Socialstyrelsen) (enbart data om längd och vikt)
- Värnpliktsregistret (Pliktverket) (enbart data om längd och vikt)
- SWEDEHEART
- Nationella diabetesregistret (NDR) (Region Västra Götalandsregionen)
- Cancerregistret (Socialstyrelsen)
- SmiNet (Folkhälsomyndigheten)
- Luftvägsregistret (Norrbottens Läns Landsting)
- Lungfibrosregistret (Karolinska universitetssjukhuset)
If you have suggestions for retrieval of other diagnostic codes or data from these registers, please contact
3. New linkages to external registers
You can apply for linkage of SCAPIS data to other external registers. The possibility of implementing a requested register linkage will be considered on a case-by-case basis. There may be formal or technical obstacles that result in a request being rejected.
Some register holders have long queues. We recommend that you do not submit your application to SCAPIS if the expected waiting time of the register holder is more than three months. You may then have to submit a new application, and the application fee may increase.
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