Data access

The first public release of data is planned for March 2021. All researchers based in Sweden, or international researchers in collaboration with a researcher based in Sweden, will then be able to apply for data. Applications will be submitted electronically via this website.

SCAPIS recruitment phase, when data, bioimages and biological samples were collected from 30 154 individuals, was completed in the end of 2018. SCAPIS aims to gradually release these resources for use in research in a form that is comprehensive, of high quality and easy to use.

The following are required to access SCAPIS data:
Connection to a research institution in Sweden
To apply for data, you have to be connected to a research institution in Sweden such as a university or a regional health care authority.
Approval from the Swedish Ethical Review Board
An approval from the Swedish Ethical Review Board (Etikprövningsmyndigheten) for the research project is obligatory before application (this approval must explicitly mention the usage of SACPIS data). Obtaining the ethics approval is the responsibility of the individual researcher or research group and there will be instructions on this website (November 15) on specific wordings that is recommended to be included in the application. Individual ethics approvals are also necessary for researchers with “own” local data generated within the SCAPIS project (“local substudies”). The SCAPIS office will review that there is an ethical approval, that it refers to the applied project and that the project’s responsible researcher is involved in the ethics application. The application will also be reviewed with regard to the requested data being relevant to the project.
Return of new variables to SCAPIS
The researcher will be asked to return that any new variables created from SCAPIS data or other SCAPIS resources will be re returned to the SCAPIS data base in a predefined format.
Guarantee no overlap with SCAPIS core publications
Within SCAPIS, there are specific scientific topics which are defined as being of such strategic importance for the significance of the value of the cohort that they have been prioritized as core publications to be written by the SCAPIS team. Topics that are too similar to those core topics will not be granted data access during a limited time period. A list of these topics will are available here. Also, certain data variables will not be assessable until the specified core publications are completed.
Administrative fee
An administrative fee will be charged before data sharing.
Apply for data access
Data that will be shared in March 2021.
More than 1000 data points (variables) will be open for access March 2021 covering areas such as:
Body measurements
General laboratory data
Blood pressure
Lung function measured by spirometry
There will be some possibility to access accelometric data showing physical activity and inactivity
Questionnaire data relating to dimensions central to the research aims.
Data from some registries of major interest such as the Pharmaceutical Register of Prescribed Drugs are also planned to be open for access.
Data from structured radiologist judgement of all images
The complex task of building a management system for bioimages obtained in SCAPIS and biobank sample information is ongoing.
Data from approximately 100 local substudies will be possible to access successively under certain conditions. They will cover subjects such as microbiota, fitness, ecochardiography, sleep apnea and cognitive tests.
Bioimages will be available for sharing successively beginning in 2021.
A plan for the release of blood samples will be presented at the opening of the data base March 2021.
Genetics data and more advanced laboratory data will be released for the complete cohort 2022-2023.